All those
steroids, immune-suppressants, HCQS and many such unpronounceable names of tabs
and caps may be commonplace now, thanks to Covid-19, but I have known them
since 2018.
After
waking up almost daily with sore and stiff joints, I could, no longer, live in
denial and visited an orthopaedic doctor and a couple of blood works later, I
was diagnosed with Rheumatoid Arthritis (RA), a rather common, degenerative, auto-immune
disease characterised by chronic inflammation in the joints and eventual
deformities. Note - Use of acronym is solely to ease pressure on finger joints!
Auto-immune
disease? A condition where my immunity decided to target my body. Or in plain
terms, my crack-head immunity cannot differentiate between an external threat like
bacteria or virus and my body’s healthy cells. So, it goes on a
self-destruction rampage. The icing on the cake? Its incurable and will last
till I last. I hear your eyes pop!
So,
what happens next? One can experience a myriad thing. Like learning creative
ways to hold a spoon when the thumb doesn’t move, or a Charlie Chaplin-esque
gait especially when one gets up to walk. In my case, I am trying to fine tune 101
ways to eat elegantly on the days when my jaws shut tight. Does it mean the British
‘stiff upper lips’ has its origin in RA?
The
medicines mentioned in the opening line are part of allopathic treatment
prescribed for this disease. They are nasty but unavoidable, especially if RA
causes severe damages. For instance, recently when HB count in my blood dropped
to 3, doctors pinned the blame on RA, the silent Jack the Ripper. I would like to
imagine it to be a stealthy vampire (inspired by the gazillion movies and
novels on suave, hot vampires) that lurks in the shadow until it gets that one
moment to suck you dry. While an unsuspecting RA patient adjusts to living with
gradual decline of joint mobility, the under currents of RA are rather strong
to jolt the human body. Four units of blood later, I am wiser and a reluctant
advocate of frequent, regular health check-ups.
Sugar,
processed food, wheat, rice, starch, dairy, animal protein, several plant
proteins will be my Achilles’ heel till I tread this planet. Most of the days I
succumb to the temptation or I am a slave to quick survival hacks. Selecting the
right lunch is like making my way through a labyrinth and most days I fail.
Imagine eyeing a plateful of your love, favourites, or usuals with suspicion.
The food, in return scorns me. Never will they be my best friend ever. Millions of my fellow RA survivors
fight these mini battles every single day of their lives.
Now
your friends want to climb mountains, you think twice before nodding. The season’s
best marathon is in town, you rethink participation as your struggle to tie
shoelaces enters day 7. Your boss sees the fire in you and approves an official
tour to Ireland. At that moment all you can think of is what happens if I get late for trainings thanks to my struggle to strap the bra on time due to a frozen shoulder or fingers? Not the happiest
moments of contemplation, right?
The fun
doesn’t end there as a renowned rheumatologist explained. One auto-immune
disease can invite more of its fellow brethren and in no time, it’s a riot. One
day it’s the muscles, another day the bones and the next day the mind. Wait,
what? The mind? Yes, my lovelies. One of the more sleek, auto-immune villains,
Lupus, can trigger depression and other psychological disorders! Ask Selena
Gomez, one of the many super celebrity Lupus patients!
I do
not intend to scare you dear reader or generate sympathy for my present
condition. What I hope is that there is enough awareness not to ignore the initial
fatigue or the painful change of side in bed.
The
next time I ask you to open the purse for me or unlock my door or seem too shy
to look straight into your eyes, do not mistake it as a hint to take our
relationship or friendship to the next level. It may just be one of ‘My hands Don’t
Work’ or ‘Neck Sore and Stiff’ days.
P.S – Do
not fret. Ayurveda, Homoeopathy and Allopathy have proven medication to control
the disease.